well, i'm back.
this whole typing with my left hand isn't that cool...but at least i'm sitting up now.
yesterday was a day full of good news.
i qualified to have the drain, that eric so lovingly described, taken out!! once it's draining less and less, it can go. which, thank god!! that was a really disgusting part of this whole lovely process. so my parents and i drove to kaiser, got that taken out.
then, ss we were all finishing dinner, dr. haun called with the pathology report from the surgery. some poor soul's job is to look through the parts of people that get taken off...to evaluate what was going on in there. yuck.
so. very good news:
1) the lymph node was officially negative for cancer. i'm still trying to get clear on all of this...but i believe that means that it's almost official that cancer did not travel to the rest of my body.
2) dr. haun was able to get very good margins around the cancer areas - 8mm. which means that it's very likely i will not need radiation.
3) the cancer is still registering that it's estrogen/progesterone receptor positive. which is a good thing. this means that the cancer was fueled by estrogen. which means if i take an estrogen blocker, it'll help starve any cancer that's left over.
all of this is very good news. i'm still feeling very cautious about getting too happy or relieved, though. i still have questions about my treatment. and until those are answered (when i meet with oncology), i'm going to be a little on edge. i'm still so worried i'll have to have chemotherapy.
and in terms of how i feel?
let's see...the nurse yesterday asked me if i could touch the top of my head with my right hand. nope.
i have all these stretches and exercises to do that hurt...and also really stretch me emotionally. like standing facing a corner, putting both of my forearms against the walls, the leaning towards the corner. someone has GOT to be kidding me with that one. no way can i do that.
i also just still have pain, twinges, stinging feelings around the incisions. and i'm still taking vicodin, which is helping a lot.
so...that's the update directly from the invalid herself.
now i have a follow up appointment with the surgeon next thursday.
sometime soon i have my first oncology appointment to talk about treatment options.
so...although we can all breathe a sigh of relief that the node is negative and all the other good things...there are still some potentially difficult things to come. i guess that's what i'm feeling now - SOME relief, but still holding back so much waiting for the treatment.
xo
This being human is a guest house.
Every morning a new arrival.
A joy, a depression, a meanness,
some momentary awareness comes
As an unexpected visitor.
Welcome and entertain them all!
Even if they're a crowd of sorrows,
who violently sweep your house
empty of its furniture,
still treat each guest honorably.
He may be clearing you out
for some new delight.
The dark thought, the shame, the malice,
meet them at the door laughing,
and invite them in.
Be grateful for whoever comes,
because each has been sent
as a guide from beyond.
-Mewlana Jalaluddin Rumi 1207-1273, written in 1230
15 comments:
Hey Meg,
Sounds like some great news. It's kinda weird to start seeing the positive within a totally wacked thing. No radiation clear nodes margins... blessings. My cancer was also estrogen pos. I had herceptin which is a newer drug that is specific to HER2NU tumors. Ask your oncologist-- maybe it will blow his socks off.
-- also I am on Aromasin (the estrogen starver that you speak of) it does not have the ovarian cancer affects of tamoxifin.
and is also somewhat new
Kari
Hi Meghan,
I'm so glad to hear this good news. I have been reading your blogs dailey. I've
never "blogged" before and it seems a little wierd to write to you knowing the whole world (I think it is the whole world) can read my communication with you. This mean I'll be sending you a card through snail mail. But, I do want you to know that I'm glad know what's going on with you. And I'm sending you lots of positive vibes.
Sounds like you like Angel Food cake. I make a pretty good one from scratch. We'll have to figure out how to hook you up with one once your not in such an uncomfortable state.
Natalie
Big smooch from Florida.
Great news !!!!!
Love ya
YAHOO!! Great news Meghan! Way to go, sistah!
Oh, Meghan, such wonderful news!! I understand that it's somewhat colored by the unkown - possible treatments - but this is so good to hear. Thank you for taking the time to let everyone know how you're doing. I've come across some photos of your mother, aunt Susan and I when we were all living together while our fathers were away in WWII...I'll send them to you for some chuckles while you recuperate!!
Cousin Linda
Oh, Meg,
Thanks for letting us know. We are holding our breath with you.
love.
hey darling. i am so glad to hear all this good news and know that there is so much more to come and soon you will be able to do all kinds of crazy stretches. also, i was talking to someone yesterday who was saying thata friend of hers got a lump out of her boob, had surgery and came out of it looking as gorgeous (and the person i was talking said "gorgeous" at least three times) as ever. since you were gorgeous (inside and out) to begin with, you have nothing less than gorgeous to look forward to, i know.
love you much,
vaidya
ahhhh, there's the meghan voice i know and love.
so glad to hear you on a bit of the up.
and your armpitthingy is out sooner than you hoped! your body is already one step ahead.
much love,
h.
Great news. Keep it coming.
If it won't hurt to laugh, get "The Big Lebowski". We just saw it last night for the first time in years and had a lot of laughs.
Hey Meghan,
Great news today!
Keep on truckin girl!
We love ya
j&d
Meghan!
So glad you're back with us! I've missed you. The Webers are all so glad to hear the good news. We love you!!!!
xoxoxoxoxo
gw, aw, mw, bw & nick (&sr)
Your voice sounds strong! Love reading the good news, and with each breath I suggest that there is more good news to come.
Know that there is so much light and love focused on you from all around...I've got all my peeps on it. Can't find the words enough to tell you how much I hope for you.
Take good care. Momma and I send so much love from 25 Eisenhower.
(Sonny is looking especially pretty on GH as of late. His new love interest is irritating, but word on the street is that Brenda is coming back--so let your friends in Port Charles keep you company, too.)
-Laura D.
I echo much of what's already said..especially the part about appreciating your words and hearing your voice...such a relief! Reading you every day, sometimes over and over.
Much love,
Susan
Meg:
Whew. So great to hear good news and news from your voice. You sound so sane.
Take it slow with the rehab exercises - you have a lifetime to heal that wound.
Lots of love and more soon,
Care
I'm glad you're back, dearie. And I'm so glad that you're coming out on top with all this good news, and you're mingo sense of humor still with you through it all.
Anyway, you are a champ. And touching your head is over rated.
lots of love to you.
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